Mother of a Toddler and Triplets Plus ONE

Friday, July 31, 2009

Just spoke with the nurses taking care of the boys...ugh I don't know how this week will go. 2 weeks tomorrow and the infections are starting???!!! To start with Logan. I guess they decided to treat his PDA today. This could be one of the reasons for his pulmonary hypertension and his inability to improve and get off the vent. They just treat it with 3 does of Ibuprofen every 12 hours. This is suppose to help the duct close. He is still having more than normal drops in his oxygen. Jacob the only one who does not still have a PDA is doing fine. They are sill increasing his feedings. He is doing okay on 2liters of oxygen on nasal canula. Oh they stopped increasing Logan's feeds for now they stopped at 8cc. Jacob is at 13cc now and still going up 1cc every 12 hours. The nurse also said he had some eye crusty things so they are starting him on antibiotic eye drops. Andrew had a blood cx done last night and is having some breathing issues today. He is needing a little more help than usual. They started him on antibiotics. They are not treating his PDA yet...I don't know why.

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Jacob

@ 3 years old: Jacob is Triplet "B" He is Logan's identical twin. He was also the recipient from the Twin to Twin Transfusion. This caused him to have to much blood flow before he was born. He had a large amount of amniotic fluid around him and an enlarged heart. 3 days before he left the NICU we were shocked to find out he had severe brain damage. Prior to him leaving the hospital he had achieved everything as well as his brother Andrew. He has cysts covering large portions of his peridal lobe and right frontal lobes. We do not know what caused his damage. He never had a brain bleed and nothing bad happened in the NICU that we know of. The doctor seems to belive it was caused by the TTTS, but 1 week old Ultrasounds showed his brain to be "normal" at that time. He has been diagnosed with Spastic Quadriplegic Cerebral Palsy. He also has cortical visual impairment, severe reflux (GERD), partial seizures, a g-tube. He can not do a lot right now, but we have faith that he will someday. He has some head control and can pull his chest off the ground and turn his head side to side. He has even surprised us a few times and rolled over.

Andrew

@ 3 years old: Triplet "C" he just hung out will his brother caused havic before they were born. He was a perfect infant and just did his own thing. As he is going into the toddler days he is definately developing his own curious personality. While he may have sat on the sidelines when they were small. He makes himself known these days. He has become quite vocal over the past few months. He learned how to walk when he was 21 months old. He climbs everything! He is a sweet boy and is Ava's best friend.

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Friday, July 31, 2009

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