Mother of a Toddler and Triplets Plus ONE

Wednesday, August 5, 2009

Ava playing dress up. She decided she had to wear all the hair clips

Jacob wearing his first pair of cloths

Holding Logan for the first time.

Some improvements today. Jacob and Andrew are both up to 25cc feeds now and no long require IV nutrition. So the IVs are off and the PICC lines are being removed from there arms. Jacob is still at 2 liter of oxygen at 24% I believe and Andrew is still on Cpap at 22%. Logan is at 10cc feedings and they are very slowly weening him his oxygen is at 38% now was at 47% the other day. Not sure what his breaths are at now. Jacob is 3lbs 2oz Logan 2lbs 3oz and Andrew is 2lbs 14 oz. The doc has also added something to the breast milk to give them more calories. Oh and I got to hold Logan for the first time last night! Yesterday they took out his arterial IV.

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Jacob

@ 3 years old: Jacob is Triplet "B" He is Logan's identical twin. He was also the recipient from the Twin to Twin Transfusion. This caused him to have to much blood flow before he was born. He had a large amount of amniotic fluid around him and an enlarged heart. 3 days before he left the NICU we were shocked to find out he had severe brain damage. Prior to him leaving the hospital he had achieved everything as well as his brother Andrew. He has cysts covering large portions of his peridal lobe and right frontal lobes. We do not know what caused his damage. He never had a brain bleed and nothing bad happened in the NICU that we know of. The doctor seems to belive it was caused by the TTTS, but 1 week old Ultrasounds showed his brain to be "normal" at that time. He has been diagnosed with Spastic Quadriplegic Cerebral Palsy. He also has cortical visual impairment, severe reflux (GERD), partial seizures, a g-tube. He can not do a lot right now, but we have faith that he will someday. He has some head control and can pull his chest off the ground and turn his head side to side. He has even surprised us a few times and rolled over.

Andrew

@ 3 years old: Triplet "C" he just hung out will his brother caused havic before they were born. He was a perfect infant and just did his own thing. As he is going into the toddler days he is definately developing his own curious personality. While he may have sat on the sidelines when they were small. He makes himself known these days. He has become quite vocal over the past few months. He learned how to walk when he was 21 months old. He climbs everything! He is a sweet boy and is Ava's best friend.

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Wednesday, August 5, 2009

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