Mother of a Toddler and Triplets Plus ONE

Tuesday, August 4, 2009

Life on the vent This is his 4th tube in 2 weeks he wants it out but his little lungs don't

Andrew is very happy mommy is holding him head gear and all

Boys are doing okay pda did not close on Logan after treatment but he continues to maintain. He excubated himself again for the 2nd or 3rd time now. Dr Brown decided to try and keep him off the vent to see how he did. They put him on c-pap. It only lasted 3 or 4 hours by 1 pm he was back on the vent. Andrew is still on same setting on his c-pap continues to desat and have heart rate drops but all his test for infection were negative and they stopped his antibiotics. Jacob still on 2 liters he is doing great both Jacob and Andrew are up to 20cc feedings and are about to stop there IV nutritian all together. Logan is at 9 or 10 cc now :-D

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Jacob

@ 3 years old: Jacob is Triplet "B" He is Logan's identical twin. He was also the recipient from the Twin to Twin Transfusion. This caused him to have to much blood flow before he was born. He had a large amount of amniotic fluid around him and an enlarged heart. 3 days before he left the NICU we were shocked to find out he had severe brain damage. Prior to him leaving the hospital he had achieved everything as well as his brother Andrew. He has cysts covering large portions of his peridal lobe and right frontal lobes. We do not know what caused his damage. He never had a brain bleed and nothing bad happened in the NICU that we know of. The doctor seems to belive it was caused by the TTTS, but 1 week old Ultrasounds showed his brain to be "normal" at that time. He has been diagnosed with Spastic Quadriplegic Cerebral Palsy. He also has cortical visual impairment, severe reflux (GERD), partial seizures, a g-tube. He can not do a lot right now, but we have faith that he will someday. He has some head control and can pull his chest off the ground and turn his head side to side. He has even surprised us a few times and rolled over.

Andrew

@ 3 years old: Triplet "C" he just hung out will his brother caused havic before they were born. He was a perfect infant and just did his own thing. As he is going into the toddler days he is definately developing his own curious personality. While he may have sat on the sidelines when they were small. He makes himself known these days. He has become quite vocal over the past few months. He learned how to walk when he was 21 months old. He climbs everything! He is a sweet boy and is Ava's best friend.

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Tuesday, August 4, 2009

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