Mother of a Toddler and Triplets Plus ONE: I'm not alone

Friday, September 3, 2010

I'm not alone

I've spent the last several hours looking though other peoples blogs. I came across 1 blog that has an entire section linked to other peoples blogs with children with disabilities. There are A LOT of people that blog about their children and their disabilities. Some kids were way less involved than Jacob and others seemingly more. I still don't know what the future hold for Jacob only time will tell. One things I did notice is how creative the other moms' blogs are. So colorful and looking like they put time and thought into each post. They have their pictures arranged just so. The categorize each post by category. LOL all their spelling and grammar is correct. Ha Ha and they don't make one big paragraph. Oh well maybe I will be more creative one day and grammatical correct.

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Jacob

@ 3 years old: Jacob is Triplet "B" He is Logan's identical twin. He was also the recipient from the Twin to Twin Transfusion. This caused him to have to much blood flow before he was born. He had a large amount of amniotic fluid around him and an enlarged heart. 3 days before he left the NICU we were shocked to find out he had severe brain damage. Prior to him leaving the hospital he had achieved everything as well as his brother Andrew. He has cysts covering large portions of his peridal lobe and right frontal lobes. We do not know what caused his damage. He never had a brain bleed and nothing bad happened in the NICU that we know of. The doctor seems to belive it was caused by the TTTS, but 1 week old Ultrasounds showed his brain to be "normal" at that time. He has been diagnosed with Spastic Quadriplegic Cerebral Palsy. He also has cortical visual impairment, severe reflux (GERD), partial seizures, a g-tube. He can not do a lot right now, but we have faith that he will someday. He has some head control and can pull his chest off the ground and turn his head side to side. He has even surprised us a few times and rolled over.

Andrew

@ 3 years old: Triplet "C" he just hung out will his brother caused havic before they were born. He was a perfect infant and just did his own thing. As he is going into the toddler days he is definately developing his own curious personality. While he may have sat on the sidelines when they were small. He makes himself known these days. He has become quite vocal over the past few months. He learned how to walk when he was 21 months old. He climbs everything! He is a sweet boy and is Ava's best friend.

About Me

Friday, September 3, 2010

I'm not alone

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