The wheel chair will look similar to this one. It is called a Quickie Zippie 2 I believe...some of the equipment will be a little different to adapt to Jacob's needs better. His chair color is black opal. It will have that glitter shimmer thing on the metal when it moves. I was told that the seat and back comes off so it will fold up small enough to fit inside my van.
|He already owns the tray to this...it look like the one that comes with the stander, just shorter. We ordered this in all blue.|
|This is his bath chair. They ordered this with a stand he will not be so low to the ground when I bathe him.|
Andrew and Ava are well. Neither are sick.
Ava went for her 4 year old check up yesterday. She is 40 inches tall and weighs 44lbs. She gained 12lbs this year when a normal child gains 6-8. I hope to get this under control this year. I really don't want her to be like my or her father, but I guess she learns from what we eat. :-/ She is healthy. She got her forms for school, but she is slightly behind for her age. This is like a knife in the heart for me. I used to feel like she was so "advanced" she walked so early. She could carry on a conversation and talk in complete sentences when she was 2. Everything pretty much went down hill when the babies came. I did not give her the extra attention and focus on things like I used to. So, I did spend $65 a week for the entire school year sending her to school part time to help with her social and learning skills this past year and I feel like it did little to nothing for her. She pretty much learned how to color. She counted to 6 for the doctor, but does not recognize the numbers. She sang her ABC's for her...omitting parts of the middle. This she could not do a few months ago. She has come a long way just by saying them. I don't think she has a learning problem just lack of stimulation. She does not recognize letters by name, but thanks to "The Letter Factory" DVD by Leap Frog she can tell you most of the sounds to the letters, just not the name of what letter it is. She also has developed some speech issues. Seems like she used to speak clearer, but now somethings are harder to understand. Like when she says "school" she say "sssdool" She also can't write any of the alphabet or her name and apparently she is suppose to do that too. Next year she has Voluntary Pre-Kindergarten Monday-Friday for 3 hours a day. Hopefully she will be "caught up" by the end of next year.
Christine and her family are do okay. They had a good vacation. Her daughter went to stay with her aunt for a month. This does not make Ava happy. So, it is just her, her husband, and her 2 boys here now. She goes for her MRI tomorrow to see if the tumor on her brain stem has grown or not. She has a bunch of doctor appointments tomorrow. Her feet have started to swell. This concerns me. They started doing it a few weeks ago, but I thought it was because she had been standing for a long time...really there is no reason for the swelling now. She is going to kill me for this, but she has put on quite a few pounds from the steroids, depression, etc. So I don't know if the water retention is her meds, vs. the weight she has put on. Things are starting to settle down around here. Hopefully the coming months will lead to some healthier eating habits for the entire family.
Please keep both our families in your prayers. God knows are needs. I trust in Him to keep our heads above water and lead us to where he wants us to be.