Pulmonologist

Jacob had a pulmonologist appointment yesterday. 1st 1 her has had  in months. His lungs were still sounding pretty junky when she seen him. She is starting him on atrovent. She increased his Flovent dose and wants him on an albuterol puffer 2x a day. This is Jacob's new medication list: Ugh!

AM: Syntroid 12.5mcg
        Klonipine 0.5mg
        Triliptol 200mg
        Flovent 2 puffs
        Ventolin 2 puffs (and every 4 hours as needed or albuterol neb instead of inhaler)
        Atrovent 2 puffs (or Atrovent neb 1/2 vial)
        Zantac 1.5ml
        Oral Steroid 3ml

Afternoon: Klonipine 0.5mg
                 Zantac 1.5ml

PM: Klonipine 0.5mg
       Triliptol 300mg
       Zantac 1.5ml
       Ventolin 2 puffs (and every 4 hours as needed or albuterol neb instead of inhaler)

       Atrovent 2 puffs (or Atrovent neb 1/2 vial)
       Flovent 2 puffs
       Oral Steroid 3ml

Needless to say I am tired of giving medications and nebulizer treatments.

Jacob has been waking up crying for hours in the middle of the night. I was awake with him from 2:30 until 6am. He acts like he is in a lot of pain. I can't really tell what is hurting him though. He arches and screams so it leads me to believe it is his stomach hurting, but he has been on a continuous feed at 40ml an hour for days now. I have not messed with it. No attempts to bolus or give baby food. I have been trying to leave his feeds alone and deal with the none stop charging of the battery and him being attached to a bag. He has several teeth coming in as well. His gums are swollen and he can't teeth like other babies do. I put a pacifier in his mouth while I held him for HOURS early this morning and sucked and chewed on it a little.

Yesterday he seemed to have been doing better and I didn't bother cancelling his therapies for today. Well, he had other plans he was so congested and was having trouble breathing. After several neb treatments, a steam shower, and suctioning he has finally went to sleep, but the therapist were unable to work with him at all. He screamed and cried the entire time.

Andrew is still sick too, but he holds his own. He has a bunch of new teeth coming in. 1 of his back teeth has totally came through and he is working on getting 3 other teeth that have just come through the gums. Poor miserable babies

Ava is still doing okay. She has discover cell phone games...ha I can't keep my phone charged. Kinda cute watching her figure out.

I hope next week is a better week. This week has attempted to be comparable to last year at this time...it will never compare to what happened last year, but dang I wish this could have been a happy week rejoicing in Logan's life not fighting off RSV!! Man I am tired.


I'm done complaining now and I will rejoice in what God has blessed me with after a nice nap :-)