Thursday, October 6, 2011

Jacob is doing great!

Jacob has been a little sick lately and has been vomiting A LOT. I stopped his E.S.S. Gran that we have been giving him to help stop the vomiting a few days ago because I could not afford to pay for it. I didn't think it was really helping him, but dang it the past few days since I stopped it he has been vomiting 2-3 times a day. He vomits no matter what when he is sick, but I am not sure if it is just him coughing so much or that the meds were helping. If he is still vomiting a lot by pay day next week I will fork out the $70 and get the medication again.

The good thing is though, when he was sick in the past he was so sick he did NOTHING. Even though he has a cough and mild congestion and vomiting up half his food every day he is still acting like his normal self.  He is taking steps, standing, and continuing to be active. He really has enjoyed his gait trainer lately. The more he is in it the more he takes steps. The botox really did great things for his legs. I really feel that he seems to have more control over them since they are a little less tight.

Jacob has a lot of his own equipment now. It is crazy how much this stuff costs! It is also crazy that out of all the equipment he has that insurance only paid for 1 thing. I thank God for the Early Steps program here. Medicaid may have paid for some stuff, but unfortunately Jacob did not have medicaid anymore when the stuff was paid for. I think of how much this stuff cost and it scares me that I will not be able to provide him things that are very useful to him when he out grows the stuff he has. He now owns a bath seat that cost over $400, a Feeder seat that cost over $500, a stander with tray that was over $4,800, and his wheel chair that was over $6,600. That is over $12,000 in equipment!!! and we are not done! Before Jacob ages out of the program the theapist plans to get him a gait trainer. He has one that is a loaner right now.

Andrew is doing awsome. He is saying new words every day. The early interventionist says he is still speech delayed but heck he talks more than some 3 year olds I have met. She wants to increase his visits back to once a week. I was a little overwhelmed when she started and I cut Andrew back to once a month. We are also still waiting for a speech evaluation for feeding therapy for Andrew. He is very picky about what he will eat willingly still.

Ava is doing great at school. She really likes it. She can write her name now and is writing some letters.

Christine and her family are doing good. HER HUSBAND GOT A J. O. B. She goes this month for another MRI to check to see if her tumor is growing.

Here is  a video of Jacob taking steps


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