Mother of a Toddler and Triplets Plus ONE: Charleywrap

Monday, April 18, 2011

Charleywrap

Jacob testing out his new Charleywrap....I'll tell you if it was worth it in a few days.

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1 comment:

AnonymousJune 16, 2012 at 10:43 AM
Hello, I am thinking about getting a charleywrap for my daughter and wanted to hear from another family who had a child who used it. Did it work for Jacob? My email is trinitystar31 at yahoo dot com. My disabled daughter is 18 with scoliosis and I am trying to find a way to avoid surgery for her. Thank you so much.
Sarah
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Jacob

@ 3 years old: Jacob is Triplet "B" He is Logan's identical twin. He was also the recipient from the Twin to Twin Transfusion. This caused him to have to much blood flow before he was born. He had a large amount of amniotic fluid around him and an enlarged heart. 3 days before he left the NICU we were shocked to find out he had severe brain damage. Prior to him leaving the hospital he had achieved everything as well as his brother Andrew. He has cysts covering large portions of his peridal lobe and right frontal lobes. We do not know what caused his damage. He never had a brain bleed and nothing bad happened in the NICU that we know of. The doctor seems to belive it was caused by the TTTS, but 1 week old Ultrasounds showed his brain to be "normal" at that time. He has been diagnosed with Spastic Quadriplegic Cerebral Palsy. He also has cortical visual impairment, severe reflux (GERD), partial seizures, a g-tube. He can not do a lot right now, but we have faith that he will someday. He has some head control and can pull his chest off the ground and turn his head side to side. He has even surprised us a few times and rolled over.

Andrew

@ 3 years old: Triplet "C" he just hung out will his brother caused havic before they were born. He was a perfect infant and just did his own thing. As he is going into the toddler days he is definately developing his own curious personality. While he may have sat on the sidelines when they were small. He makes himself known these days. He has become quite vocal over the past few months. He learned how to walk when he was 21 months old. He climbs everything! He is a sweet boy and is Ava's best friend.

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Monday, April 18, 2011

Charleywrap

1 comment: