Thursday, August 11, 2011

Finding A Diagnosis for Joseph

An online friend of mine that I have been in contact for quite awhile now needs a little help. Anyone that has special needs children out there knows how important it is to find out why your child is the way they are. In her case she has no physical explanation to why her son has special needs. She has 3 surviving quadruplets. 2 of her children have high functioning autism. They recently had MRIs done and her daughter has PVL, but to her surprise her son who has the lowest level of function of her 3 has a perfectly normal brain. She is trying to take her son to a specialist that deals with children with low tone etc. She can tell her story much better than I can. I just wanted to share the link to her blog and donation site. If anyone can even give a $1 to help the find a diagnoses for her son that may improve his quality of life, please do. Thank You

6yhzo

The link to my friends blog: http://mommax6.blogspot.com/

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Jacob

@ 3 years old: Jacob is Triplet "B" He is Logan's identical twin. He was also the recipient from the Twin to Twin Transfusion. This caused him to have to much blood flow before he was born. He had a large amount of amniotic fluid around him and an enlarged heart. 3 days before he left the NICU we were shocked to find out he had severe brain damage. Prior to him leaving the hospital he had achieved everything as well as his brother Andrew. He has cysts covering large portions of his peridal lobe and right frontal lobes. We do not know what caused his damage. He never had a brain bleed and nothing bad happened in the NICU that we know of. The doctor seems to belive it was caused by the TTTS, but 1 week old Ultrasounds showed his brain to be "normal" at that time. He has been diagnosed with Spastic Quadriplegic Cerebral Palsy. He also has cortical visual impairment, severe reflux (GERD), partial seizures, a g-tube. He can not do a lot right now, but we have faith that he will someday. He has some head control and can pull his chest off the ground and turn his head side to side. He has even surprised us a few times and rolled over.

Andrew

@ 3 years old: Triplet "C" he just hung out will his brother caused havic before they were born. He was a perfect infant and just did his own thing. As he is going into the toddler days he is definately developing his own curious personality. While he may have sat on the sidelines when they were small. He makes himself known these days. He has become quite vocal over the past few months. He learned how to walk when he was 21 months old. He climbs everything! He is a sweet boy and is Ava's best friend.

About Me

Thursday, August 11, 2011

Finding A Diagnosis for Joseph

To donate: http://www.gofundme.com/6yhzo

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