Happy Happy Joy Joy

Logan is still negative for RSV. They did a super pubic cath on him yesterday because the clean catch and regular cath was not good enough apparently. I did like the fact they stuck a needle in my babies bladder to take urine....He was switched back to automode on the ventilator last night and this morning he was put back on cpap! They weened the pressure from 18 to 13 and oxygen from 32 to 27% He is doing good. Dr. Brown is back from vacation today so hopefully we can get the ball rolling with his surgeries so he can come home. I spent some alone time with him last night and he pooped on me while I tried to change his diaper. He loves me. He smiled at him mobile most of the time and tried to pull his trach off while I was there. I just learned from the nurse 3 urine samples later that all showed the same thing..that he has a UTI and he is being started on antibiotics.

Andrew and Jacob are doing well. Jacob seems like he is starting to look at faces more and focus a little better. He is doing some 2 second smiles and seems happy. Andrew is still a sweet boy. Both love to cuddle.

All 3 of my babies at home are sick. Of course Ava is couching all over everyone. She just informed me she picked her boo boo on her arm and needs to take a bath. She is currently playing with cut up hot dogs in small blue best buy bag. Glad she is so entertained messing up the house.

Goal of the week is to get this house back in shape! Planning on giving a bunch of crap away and throwing away the crappy crap :-)

Trying to motivate myself to get up and get the kids ready so I can go to the bank and wal-mart................ I love my husband. He is so wonderful..He spent all day cleaning our room. Yes did require taking all day...hopefully I can finish it today. Must stop Ava from putting hot dogs in the toy lawnmower now!

Merry Christmas

Not such a Merry Christmas for Logan who of course still resides at Winnie Palmer Hospital. He had a bad Christmas Eve. He apparently desated down in to the 30's quite a bit during the morning and stopped breathing at a normal range and some points stop breathing all together. He was not waking up to stimulation at all. So of course they ran the same battery of test they have been doing almost bi-weekly at this point and of course everything has been negative. Even the RSV is negative. They did an RSV Cx yesterday and today. Both are negative. His ABG is normal and Co2 is in a normal range for him. I think it was 58. The only thing that has change is a blood pressure med they put him on. He was taking clonidine, but it was not doing to much to help his blood pressure anyways. One of the side effects it drowsiness. It definitely made him sleepy. They did stop it and he has woke up. His blood pressure is still pretty high and to compensate his pulse is low. Don't know what they are going to do about his BP now. He is currently on 30% back on the vent fully breathing for him at a rate of 40. He is starting to breath over the vent again and hoping in the next 24 hours they can put him back on auto mode and ween him back off the vent again.

We woke up around 8 this morning fed the babies and then open presents. Ava seemed to have forgotten they joy of unwrapping presents that she discovered last year, but soon realized again and unwrapped all her presents then helped Jack unwrap his too. After each gift she tried to open it and play with it, until she realized there were more. LOL when she got her Phineas and Ferb DVD she immediately tried to go open it and put it in her DVD player. After clean up time and settling down the babies, Ava sat in "her" recliner and watched P. & F. She was so into the commercial free cartoon I had to call her name like 6 times for her to respond.

Jack is currently home with the children while I work 1p to 7p where I currently only have 1 patient so I have plenty of time to write this blog :-) I have to take the chart to the doctor now. I will post pictures later.

MRI DAY

Jacob had his MRI today. It makes me sick when I look at the images. I know he is a miracle and will serve the purpose God made for him. It still make me want to puke to know that my beautiful son's brain is wrecked for not fault of his own. Like any mother I ask why? Why him? He did great though. We are at All Children's Hospital in St. Pete. I have to spend the night with him just to make sure he does not stop breathing from the sedation. This sucks! He is very cranky. He FINALLY just went to sleep. He has been awake ALLLLLLLLLLL day! I will not have the official report for a few days if it is worse than the orgional ultrasound. There is so much damage it is hard for me to tell. FYI All the big black areas in the images I posted should be grey.

Logan is doing wonderful! He is at 25% on cpap mode. They are giving him fentenyl for his "pain" and valum. This is all I have to write for now. I am going to sleep. Because apparently parents have to stay at kids beside so nurses have to do no work at all.

RSV again!

I found out at 5am this morning that Logan tested positive for RSV. He has had a runny nose over the night and was desating. Still at 28% and on cpap. Please pray he does not deteriorate! He will NOT go to surgery this week because of the RSV. I also found out that Logan has kidney stones in both kidney from the Lasix he has been on. So they are changing his meds and surgery will not be until sometime after the 28th when Dr. Brown comes back from vacation. She actually thinks he will be coming HOME IN 3-4 weeks!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Please pray for Jacob as he undergoes his MRI tomorrow and that he comes out from the sedation okay. I pray they see GOOD changes on his MRI and nothing new.
Thank you to my sisters for taking care of my babies while Jack and I are at work. Thank you Jill for taking care of my babies on Monday.

Vent changes and surgery date

Logan continues to do well. He is still on 28% oxygen and is now OFF THE VENTILATOR and on cpap mode all the time. I hope he does well this time! He is still at 0.8 on prednisone. He has a surgery date for Wednesday 12-23-09 to repair hernias, do the inisiant if I spelled that right, and G-tube placement. Please pray for him that all goes well. I really hope he will get to come home in January.

Jacob and Andrew are having better days. They are still congested, but not coughing like the used to. They have been sleeping through most of the night. Jacob more than Andrew. Jacob is awake a lot more and loves being held ALL THE TIME. That kid cries anytime he is not held, but he can literaly throw a fit from one end of the room to the other. If he is on his belly he kicks himself "crying the entire time of course" from one end of the room to the other then turns himself and kicks himself across the room some more. The tips of his toes have skin peeling on them from this. I'm going to make him start wearing shoes I guess lol.

Andrew is so sweet and lovable he is to busy smiling and cooing at you to eat him bottle most of the time. He holds his head up better every day. He turns himself in circles on his belly buy doesn't move like Jacob. I wish Jacob would smile. :-(

Ava has these building blocks she got from Jennifer Brandt. (Thank You) I bought her some for Christmas too. She LOVES THEM. She is using one right now pretending it is a bar of soap I guess. She is washing under her arm pits with it in the living room while she watches her Phineas and Ferb. She is telling me the colors of all her blocks and building mommy castles.

I am worried about breastfeeding. Seems like no matter how much I pump, I am getting less and less milk. As of yesterday I officially have not produced enough to feed Andrew and Jacob without formula added or thawing from the deep freezer. I have been trying to save what I have left in the freezer for Logan while he is in the NICU. I only have maybe 30 5-6 oz bags left. Enough for a few more weeks. I will continue to pump like I did with Ava until the don't work at all. With Ava my milk supply did not drop like this until she was 10 months old. I guess when I run out whatever I can pump I will split 3 ways and supplement formula. I guess I should be glad I have been able to fully breastfeed 3 babies for almost 5 months. I just realized the boys are 5 months old today.

I think I will get around to decorating the Christmas tree today. It has been sitting in the stand since Monday. I just feel so blah. I don't have a desire decorate it. Maybe when I finally finish pumping...........takes me over an hour to pump 6oz except 1st thing in the morning it takes me an hour to pump 12 oz if I am lucky :-(

Logan's ultrasound result and withdrawls

Logan had an upper GI series done yesterday to determine if he need the procedure for reflux. It came back that he does not have reflux...which I find hard to believe...how did he always have milk in his mouth when he was on bolus NG tube feeds??? However, they did think they saw some narrowing deformity in his stomach. So, today he had an ultrasound of his stomach done which was apparently normal. Last night he was turned down to 26% on his oxygen. He did very well all day on his saturations. He has not been sleeping well. The nurse thinks he is withdrawing off all the addictive medications he has been on. I. E. Methadone and Versed. He is sweaty, irritable and crying a lot. He is back at 28% but like I said he has been very upset. He is still getting 12 hours a day on cpap. 6 on and 6 off. Still no word on surgery day or time.